liv.withlupus

My energy was low, and my body felt light. The rashes on my face and body felt like it was eating me away. Nothing helped my appetite or lifted my mood. That night, as I was putting Rooster to sleep, she said to me:  Continue reading

I woke and got ready per usual. As I was putting lotion on my face, I noticed one or two red spots. I ignored it, thinking it was probably just dry. The next day, a few more red spots appeared. The following days, more and more appeared. I was devastated. Continue reading

I had booked this trip quite quickly. Shortly after being discharged from the hospital, I promised the girls we would visit Disneyland once I got better. I wouldn’t say I was feeling good enough to undertake the strenuous physical aspect of the trip, but I constantly reminded myself that if I don’t try, I will… Continue reading

It was a sunny day and I had just celebrated my birthday not long ago. A week prior, I was walking and breathing fine. We went out for an early dinner and had some delicious cake at our usual spot. A few days later though, my resting heart rate was constantly above 110 bpm and.. Continue reading

For the rest of January, I felt fine. I was still recovering from surgery, but I was so glad my left leg finally felt normal again. It’s so difficult to decipher what is normal anymore, and just being able to walk and keep up with the girls without having to stop every five or ten Continue reading

Sometime last year, we booked reservations to stay at Whistler for the girls to attend the ski school there. We had been hyping it up for them since, and they were super excited. The problem was that the trip was scheduled a week after my surgery. Thankfully, the surgery went well, and I was given… Continue reading

I was on a stretcher in the hallways of the ER for what seemed like forever. Over the next few hours, a couple of different doctors came by to ask me questions about my medical history; nurses came by to give me pain medication/fluids; lab technicians came to draw tubes after tubes of blood; radiology… Continue reading

Near Halloween, the pain in my knees returned and intensified. Rooster asked if I was going to be okay to take her trick-or-treating and expressed how much she wanted me to go with her. Continue reading

“Looking at your markers, it is quite evident you have lupus, and of the aggressive type.” Medical professionals suggest stress may be a causation, but no one really knows. Continue reading